Saturday, November 5, 2011

3rd Week Post-Procedure

Oct 26th-Nov 1st.
Throughout the 3rd week post-procedure, I've had a few minor symptoms reappear. For the most part, they happen when I go through the better part of a day without drinking as much water as I would have liked. I have a 1 liter lulu lemon water bottle that I drink from all the time, and ideally I'd like to get down 4 full bottles throughout the day. However some days when I have a few errands to run, or find myself at the mall for a couple hours (just to get out of the house), it's easy to lose track of time and barely get half of that in my system before suppertime. I find these are the days that I'll notice a symptom spike in the evening.  I don't know if it's from the running around, from the lack of H2O or the combo of it all, but you can be sure that if it's an easy fix like drinking more water, I'm gonna have to be more vigilant.  If there's one positive though, it's that my bladder enjoys the break on these days! haha!

For those of you who don't already know this, CCSVI has its own symptoms, as does multiple sclerosis. Yes they share a few similarities, but it's important to know that CCSVI is a disease of it's own.  It was only by luck and through looking outside the box while examining MS  that CCSVI was discovered.  Now through ongoing research  this disease is being thoroughly examined and it's still to be determined how CCSVI and MS are related. A patient with MS is more likely to have CCSVI (narrowing of the neck veins) than a health patient.  It has been determined that a patient with CCSVI usually experiences fatigue, interrupted sleep and dysfunction of the autonomic nervous system. Also, they may experience cognitive dysfunction, usually in the form of "brain fog" or difficulty finding words. The doctors at Synergy told me that through the hundreds of patients they've treated, these are the symptoms that consistently clear up after the procedure. Other more distinct MS symptoms such as spasticity, tremors, gait & sensation problems tend to remain, even after the procedure.

My biggest symptom complaints before the procedure were:
  1. brain fog
  2. tingle sensations 
  3. uncontrollable shivers
  4. freezing left foot
  5. 24/7 headaches
All MS symptoms yes, but some possibly solely CCSVI symptoms. Still following? Anyway the doctors at Synergy said that the brain fog, headaches & body temperature issues have a good chance of improving.  Unfortunately, the tingles may always be an annoyance and knee-high wool socks have just become a go-to accessory for me.  Good thing they're in this season! But to be honest, as long as the "cog-fog" & headaches stay away, I'll consider the procedure a success as my quality of life has improved by removing those two symptoms.

Like I wrote in an earlier post, week 2 I was feeling A-MAZ-ING;  like my old MS-free self!  When I say that symptoms have been reappearing throughout this 3rd week, it's only been the tingles, which is actually a symptom that shouldn't have been affected by this treatment to begin with.  There's really no explanation for this phenomenon so I won't waste time stressing over it.  All I can do is continue to do the things that make me feel good and try to avoid the things that don't.  Simple.

Now for some inspiration... Here's a picture of my hunky doctor, Dr. Todd Harris.  I'm pretty sure he's straight off the set of Grey's Anatomy :P


H. xo





2nd Week Post-Procedure

Oct 19-25th.
I have a hard time saying this out loud because I'm quite superstitious and I don't want to jinx anything, but....... I'm feeling pretty great :) It's been two weeks post-procedure and I can honestly say that this is the best I've felt in almost a year!  I've been recovering sans-stress, eating well, staying hydrated, sleeping lots, being optimistic & hopeful, and apparently........ it's working.  People keep telling me I have more color in my face and that am looking good (yay blood flow!).  I'll take it. 

However, there's a question that I face: when someone like me has health issues that can make them feel crappy > 50% of the time, is it OK to push yourself (possibly over-doing it) when you have a feel-good day?  I personally have the tendency to take those "good" days and run with them, pushing myself maybe a little too hard to get all the things done that I put off for so long when I wasn't feeling so hot.  It's hard not to act this way when you're so used to feeling less than par most of the time.  If you wake up feeling great one morning, you want to get the most out of this day because who knows what tomorrow will bring.  Unfortunately, when you push yourself in this fashion, tomorrow usually brings... a bad day.  You can't win!  Opinions???

Anyway, I've been feeling good all week and I'm forcing myself to take it as easy as possible, and I'm doing a pretty good job at it.  Mom knew I was back to my normal self when she called and I answered my cell phone from the stall of a dressing room at the mall :)

Here's to my continued progress and free flowing veins!


H. xo